Richards, Dawn P.
Mulhall, Hetty
Belton, Joletta
de Souza, Savia
Flynn, Trudy
Haagaard, Alex
Hunter, Linda
Price, Amy
Riggare, Sara
Tufte, Janice
Twomey, Rosie
Khan, Karim M.
Funding for this research was provided by:
Canadian Institutes of Health Research Institute of Musculoskeletal Health and Arthritis
Article History
Received: 2 February 2024
Accepted: 28 June 2024
First Online: 29 July 2024
Declarations
:
: A Project Ethics Community Consensus Initiative (ARECCI) framework was used to assess for and mitigate ethical risks for a survey of PxP participants (attendees, hosts, session participants) as well as SC members, including the four-step ARECCI Ethics Screening Tool and the ARECCI Ethics Guidelines. The surveys were deemed as minimal risk to participants, and did not require review from a Research Ethics Board. The surveys were answered anonymously (no identifying information was collected) and voluntary, and there was a consent statement before the survey start so they could opt out of if they wished.
: Individuals who chose to complete the survey (see above) were consented for their results to be part of a discussion in a publication. One person did not consent to their survey results being used for this purpose, and their results were removed from those discussed in this paper.
: DPR is a full-time employee of Five02 Labs, Inc., and is under contract to the Canadian Institutes of Health Research Institute of Musculoskeletal Health and Arthritis to support its patient engagement efforts.