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Authors
Mukuria, Clara https://orcid.org/0000-0003-4318-1481
Rowen, Donna
Acaster, Sarah
McGarry, Lisa J.
Lou, Yiyue
Sosnay, Patrick R.
Quittner, Alexandra L.
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Funding
Funding for this research was provided by:
Vertex Pharmaceuticals Incorporated (Vertex Pharmaceuticals Incorporated)
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Article History
Received: 15 June 2023
Accepted: 4 February 2024
First Online: 28 February 2024
Declarations
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: For all of the studies contributing data, an ethics committee at each of the trial sites reviewed and approved the protocols. All patients or their parent/legal guardian provided written informed consent to participate in those studies and for the use of the study data for research.
: Not applicable.
: CM reports membership with the EuroQol Group Association and support from Vertex Pharmaceuticals Incorporated for the design, management, and undertaking of all aspects of the study. DR reports funding for the study from Vertex Pharmaceuticals Incorporated. SA reports consulting fees (received by Acaster Lloyd Consulting Ltd from Vertex Pharmaceuticals Incorporated) for the design, analysis, and interpretation of the data. LJM, YL, and PRS report employment with Vertex Pharmaceuticals Incorporated and may own stock or stock options in that company. ALQ has nothing further to report.
