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Article History

Received: 31 May 2024

Accepted: 26 November 2024

First Online: 5 December 2024

Declarations

:

: All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and the 1964 Helsinki Declaration and its later amendments or comparable ethical standards. The study was approved by the Regional Ethical Review Board in Lund, Sweden (Dnr 2021-05567-01).

: Informed written consent was collected from all participants prior to entry into the study. We received several incomplete consent forms that we had to return for a signature. They were never returned, resulting in a lower response rate. Participants were assured that they had the right to withdraw from the study at any point throughout the study. To ensure confidentiality, personal data were coded. Participant and study-related data are stored in digital form and are password-protected. The final results of this study will be disseminated by the research team to health care professionals, and relevant public and political groups. Presentations will be given at community forums such as patient support groups, in the media and at relevant national and international scientific conferences.

: The authors declare that they have no financial or other competing interests to disclose.