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Content validation of the Angioedema Quality of Life Questionnaire (AE-QoL) in a population of adult and adolescent patients with hereditary angioedema (HAE)

Crossref DOI link: https://doi.org/10.1186/s41687-025-00876-3

Published Online: 2025-04-12

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

Broderick, Lynne https://orcid.org/0000-0001-8783-9877
Foster, April

Waldman, Laura Tesler

Jacobs, KD

Bordone, Laura

Yarlas, Aaron
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Text and Data Mining valid from 2025-04-12

Version of Record valid from 2025-04-12
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Article History

Received: 9 December 2024

Accepted: 6 April 2025

First Online: 12 April 2025

Declarations

:

: This study was granted ethics approval by WCG IRB (IRB tracking number: 20224651). WCG IRB granted a waiver of documentation of signed consent for this study, though interviewers collected verbal consent prior to the start of each interview.

: Not applicable.

: Laura Bordone and Aaron Yarlas are current employees of Ionis Pharmaceuticals. Lynne Broderick, April Foster, KD Jacobs, are employees of QualityMetric which was contracted by Ionis Pharmaceuticals to carry out this research. Laura Tesler Waldman was an employee of QualityMetric at the time of the study.

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