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Authors
Siddiq, Sab
Ainsworth, Jenny Sammy
Pain, Clare E.
Smith, Eve M.D.
Zhao, Sizheng Steven
Hughes, David M.
McCann, Liza J.
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Funding
Funding for this research was provided by:
Hugh Greenwood Legacy Fund
Faculty of Health and Life Sciences, University of Liverpool
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Article History
Received: 25 July 2024
Accepted: 27 March 2025
First Online: 9 April 2025
Declarations
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: The Institute of Life Course and Medical Sciences Research Ethics Committee, University of Liverpool, granted human participants access and ethical approval (ILCAMS-REC reference 10556) for this study. Written informed consent for participants was not deemed necessary and waived by the IRB Board (ILCAMS-REC reference 10556) since the work did not involve any individual patient recruitment or patient identifiable data. Research was conducted in accordance with the Declaration of Helsinki. Participants were already part of established PPI research groups (Your Rheum, Generation R and Lupus UK) and actively chose to participate in these focus groups. Information about the study was given to participants via PPI Leads of these organisations prior to focus groups, allowing participants to decide if they wanted to take part. No patient identifiable information was kept as part of this study. Meeting notes simply included the number of young people involved in discussion and an anonymised documentation of discussion.
: Not applicable.
: The authors declare no competing interests.
