Simione, Meg http://orcid.org/0000-0003-2636-9714
Aschbrenner, Kelly
Farrar-Muir, Haley
Luo, Man
Granadeno, Jazmin
Caballero-Gonzalez, Ariadne
Price, Sarah N.
Torres, Carlos
Boudreau, Alexy Arauz
Fiechtner, Lauren
Hambidge, Simon J.
Sease, Kerry
Taveras, Elsie M.
Funding for this research was provided by:
Patient-Centered Outcomes Research Institute (DI-2017C3-9005)
National Heart, Lung, and Blood Institute (1R01HL146782-01, K23HL161447, 9K24HL159680)
Eunice Kennedy Shriver National Institute of Child Health and Human Development (K23HD090222)
Article History
Received: 30 December 2022
Accepted: 28 October 2023
First Online: 16 November 2023
Declarations
:
: A fact sheet was provided to parents and verbal consent was obtained from those who agreed to complete a survey. Consent was obtained from clinicians who agreed to participate in a survey. The study protocol was approved by the Mass General Brigham institutional review board.
: Not applicable.
: The authors declare that they have no competing interests.