Document is current

Article History

Received: 30 October 2023

Accepted: 3 May 2024

First Online: 24 June 2024

Declarations

:

: As detailed in the text, the study was approved by the Institutional Review Boards of MassGeneral Brigham, the Massachusetts Department of Developmental Services, and the Massachusetts Department of Mental Health.

: Not applicable.

: Dr. Bartels reports receiving research grant funding from PCORI and NIH, and receives consulting fees as scientific co-director for a SAMHSA funded Center of Excellence for Behavioral Health Disparities in Aging at Rush University.Dr. Becker was supported by AHRQ grant number T32HS000063 as part of the Harvard-wide Pediatric Health Services Research Fellowship Program. Dr. Becker is a current recipient of the American Academy of Child and Adolescent Psychiatry (AACAP) Junior Investigator Award supported by AACAP and Industry Sponsors (Sunovion Pharmaceuticals, Inc. and Supernus Pharmaceuticals, Inc.).Dr. Donelan reports receiving funding from PCORI, American Cancer Society, Dartmouth College, and Brandeis University. She is an unpaid board member of Bridges Associates, Yarmouthport, MA.Dr. Freedberg reports receiving research grant funding from NIH.Dr. Fung reports receiving research grant funding from NIH and AHRQ.Dr. Levison reports receiving research grants from NIH and receives fees as a medical advisor to eMED, LLC.Dr. Skotko occasionally consults on the topic of Down syndrome through Gerson Lehrman Group. He receives remuneration from Down syndrome non-profit organizations for speaking engagements and associated travel expenses. In the past 2 years, Dr. Skotko received annual royalties from Woodbine House, Inc., for the publication of his book, Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters. Within the past 2 years, he has received research funding from AC Immune, and LuMind IDSC Down Syndrome Foundation to conduct clinical trials for people with Down syndrome. Dr. Skotko is occasionally asked to serve as an expert witness for legal cases where Down syndrome is discussed. Dr. Skotko serves in a non-paid capacity on the Honorary Board of Directors for the Massachusetts Down Syndrome Congress and the Professional Advisory Committee for the National Center for Prenatal and Postnatal Down Syndrome Resources. Dr. Skotko has a sister with Down syndrome.