Received: 1 September 2020
Accepted: 29 October 2020
First Online: 10 November 2020
Ethics approval and consent to participate
: Full ethics approval for a cohort study was granted by London - South East Research Ethics Committee 07/MRE01138 in June 2007. In December 2017, the ethics committee approved an amendment for the survey to be converted from a paper version into an electronic format.
: Not applicable.
: Lisa Vinikoor-Imler and Lasair O’Callaghan are and Kathryn Giblin was employees of Biogen at the time of this manuscript preparation and own stock/stock options at Biogen. Kathryn Giblin is currently an employee of Sarepta Therapeutics, Inc. Lysbeth Floden, Tara Symonds, and Chris Hartford are employees of Clinical Outcomes Solutions, which received funding from Biogen to conduct the study described here. Joanna Zakrzewska has a consultancy agreement with Biogen.