Funding for this research was provided by:
Newlife – The Charity for Disabled Children (n/a)
Research Trainees Coordinating Centre (n/a)
Medical Research Council Canada (RG91365)
Wellcome Trust (WT098051)
Health Innovation Challenge Fund (HICF-1009-003)
Text and Data Mining valid from 2019-08-06
Received: 5 April 2019
Accepted: 22 July 2019
First Online: 6 August 2019
Ethics approval and consent to participate
: This study was approved by the Cambridge Central Research Ethics Committee (‘Phenotypes in Intellectual Disability’, reference: 11/EE/0330). Parent or Carer gave written informed consent on behalf of participants under the age of 16. For participants aged 16 and over, lacking capacity to consent, a consultee was appointed. Prior to testing, research assistants ensured the project had been discussed with participants. The DDD study has UK Research Ethics Committee approval (10/H0305/83, granted by the Cambridge South REC, and GEN/284/12 granted by the Republic of Ireland REC).
: Obtained within study participation consent.
: The authors declare that they have no competing interests.