Funding for this research was provided by:
National Human Genome Research Institute (R01-HG-007733)
Received: 3 October 2019
Accepted: 30 April 2020
First Online: 15 May 2020
Ethics approval and consent to participate
: The Vanderbilt University Institutional Review Board deemed this research exempt under 45 CFR 46.104(d) (2). At the start of each interview, interviewers provided a study information sheet describing the study, the purpose of the interview, and the risks, potential harms, and protections; after allowing sufficient time to read the information and an opportunity for questions, interviewers obtained each interviewee’s verbal agreement to their participation in, and audio recording of, the interview.
: Not applicable.
: The authors declare that they have no competing interests.