Funding for this research was provided by:
Patient-Centered Outcomes Research Institute (1501-26498)
National Center for Advancing Translational Sciences (UL1TR000445)
Received: 18 September 2017
Accepted: 30 May 2018
First Online: 8 June 2018
Ethics approval and consent to participate
: Informed consent was waived for this IRB-exempt, HIPAA-compliant, retrospective review of prospectively acquired quality improvement data. The Vanderbilt University Medical Center IRB approved this work as research involving the collection or study of existing data, documents, records, pathological specimens or diagnostic specimens, if the sources are publicly available or if the information is recorded by the investigator in such a manner that subjects cannot be identified directly or through identifiers linked to the subjects. The Vanderbilt University Medical Center IRB is our ethics review board. As this was obtained as de-identified data, we are unable to obtain informed consent from the de-identified sample and the Vanderbilt University Medical Center IRB did not require attempting to obtain consent on this de-identified sample. Respondents voluntarily attended the focus groups and contributed data through participation in the audience response activity. Participants were informed that their responses would be used for quality improvement purposes, such as the development and implementation of an information technology system for communicating guideline information in accordance with patient-reported preferences. The data are not publicly available, but are de-identified, tabulated in terms of totals and percentages (note attached spreadsheet), and stored on an encrypted, password-protected computer.
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