Funding for this research was provided by:
ALS stichting Nederland (2016-51)
Received: 18 August 2020
Accepted: 17 November 2020
First Online: 14 December 2020
Ethics approval and consent to participate
: Ethical approval was not required as the Dutch Medical Research Involving Human Subjects Act was not applicable. Written informed consent was obtained from the patients and caregivers representatives who participated in the expert advisory panel.
: Not applicable.
: There are no competing interests.