Funding for this research was provided by:
National Institute for Health Research
Medical Research Council
Received: 19 November 2020
Accepted: 9 June 2021
First Online: 28 June 2021
: The patient was a participant in the National Prion Monitoring Cohort (UK) a prospective research study approved by NHS Research Ethics Committee.
: Written consent for the publication, including clinical details of the deceased and their family, was obtained from the next of kin.