Yoo, Hyun Kyoo http://orcid.org/0000-0001-7237-7358
Porteous, Alex
Ng, Alvin
Haria, Keval
Griffiths, Annabel
Lloyd, Andrew
Yang, Xiaoqin
Kazeem, Gbenga
Barut, Volkan
Article History
Received: 3 November 2022
Accepted: 7 October 2023
First Online: 23 November 2023
Declarations
:
: A favourable ethical opinion for this study was received from the London – West London & GTAC Research Ethics Committee (Reference: 21/PR/0110). Upon establishing eligibility, patients were informed about the study and asked to give their consent via a tick box, without which they were unable to complete the survey. All methods were conducted in accordance with relevant guidelines and regulations.
: Not applicable; no individual personal data were collected.
: HKY: Employee of Alexion, AstraZeneca Rare Disease; shareholder of AstraZeneca. VB: Employee and shareholder of AstraZeneca. AP, AN, KH, AG: Employees of Costello Medical. AL: Employee and stockholder of Acaster Lloyd Consulting Ltd. XY: Employee of MSD; stockholder in Merck & Co., Inc., Rahway, NJ, USA. GK: Ex-employee of AstraZeneca.