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Authors
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Funding
Funding for this research was provided by:
Patient and public involvement fund managed by research design service Yorkshire and Humber (n/a)
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Article History
Received: 2 January 2019
Accepted: 20 September 2019
First Online: 13 October 2019
Ethics approval and consent to participate
: Written consent was obtained from all parents. Ethical approval was secured from Sheffield Hallam University Health and Wellbeing Faculty Research Ethics Committee (ID: ER5861946, 14th March 2018).
: In view of the rarity of the condition which limited anonymity, we obtained explicit written informed consent from the study participants to publish the findings as part of the ethics approval.
: The authors declare that they have no competing interests.
