Funding for this research was provided by:
Oral and Maxillofacial Surgery Foundation
Received: 24 November 2020
Accepted: 7 April 2021
First Online: 14 April 2021
: Data collection protocols for the FD/MAS Alliance Patient Registry (FDFPR) are reviewed by New England IRB (Needham, MA) and are in accordance with the 1964 Helsinki declaration and its later amendments or comparable ethical standards. Deidentified data provided for this study by the Fibrous Dysplasia Foundation was deemed exempt from further review by the Loyola University Maryland IRB.Informed consent/assent was obtained from all individual participants included in the study by the FD/MAS Alliance. Adults and minors provide their consent by clicking on an appropriate series of buttons, which creates a record of their agreement and allows them access to the registry surveys.
: The author has no relevant financial or non-financial interests to disclose.