Received: 1 July 2021
Accepted: 23 August 2021
First Online: 6 September 2021
: This study was reviewed and approved by Seattle Children’s Hospital Institutional Review Board (IRB). The Global PWS Registry was approved by the New England IRB. All methods were carried out in accordance with relevant guidelines and regulations.
: Not applicable.
: AP and SK do not have competing interests related to the interpretation of the data, presentation of information, and publication of the manuscript. SK received research support from Janssen and Janssen, Roche, and Zynerba. JB, LS, and TS are working for the Foundation for Prader-Willi Research (FPWR) that also maintains and administers the Global PWS Registry.