Gallastegui, N
Steiner, BUK
Aguero, P
Bailey, C
Kruse-Jarres, R
Quon, DV
Hanacek, C
Volland, LM
Barnes, RFW
von Drygalski, A
Funding for this research was provided by:
Pfizer Hemophilia
Health Resources and Services Administration (H30MC24045, H30MC24045, H30MC24045, H30MC24045, H30MC24045, H30MC24045, H30MC24045, H30MC24045, H30MC24045, H30MC24045)
Article History
Received: 17 May 2022
Accepted: 29 November 2022
First Online: 21 December 2022
Declarations
:
: All subjects signed an informed consent. The study was approved by the ethics committees and/or institutional review boards of The University of California San Diego, The Washington Center for Bleeding Disorders and The Orthopaedic Institute for Children. All experiments were performed in accordance with relevant guidelines and regulations.
: Non applicable.
: NG:The author declares that they have no competing interests.BUKS: The author declares that they have no competing interests.PA: Received honoraria from Bioverativ/Sanofi-Genzyme, Takeda, and Uniqure for participation in industry-sponsored education events and development of online content.CB: The author declares that they have no competing interests.funding from Genentech. Serves as educational speaker for Roche and Takeda.DVQ: Serves as a consultant and participates in the advisory boards for Bayer, Biomarin, Genentech, Novo Nordisk, Sanofi, and Takeda. Also serves as a speaker’s bureau for Biomarin, Genentech, Novo Nordisk, Sanofi, and Takeda.LMV: The author declares that they have no competing interests.CH: The author declares that they have no competing interests.RFWB: The author declares that they have no competing interests.AvD: Received fees from Biomarin, Bioverativ/Sanofi-Genzyme, Genentech, CSL-Behring, Novo Nordisk, Takeda and Uniqure for participation in industry-sponsored education events and Advisory Boards. She has received research funding from Bioverative/Sanofi-Genzyme and Pfizer. She is Co-Founder and a member of the Board of Directors of Hematherix Inc. She holds a patent for a superFVa and she is the physician lead for the Joint Activity and Damage Examination (JADE) Ultrasound measurement tool, copyrighted through the University of San Diego California.