Li, Jordan Y. http://orcid.org/0000-0002-5028-6903
Bodda, Sarah
Jay, Alex
Kichenadasse, Ganessan
Chong, Michael
Gleadle, Jonathan M.
O’Callaghan, Michael
Funding for this research was provided by:
Flinders University
Article History
Received: 13 December 2021
Accepted: 13 July 2022
First Online: 21 July 2022
Declarations
:
: The study aspects fall under the jurisdiction of the Southern Adelaide Clinical Human Research Ethics Committee (SAC HREC). The SAC HREC approval (Ref. No. HREC/18/SAC/330) covers the confidentiality of all data accessed by staff, the distribution and publication of the data. An opt-out consent model is employed in this registry which has been approved by the SAC HREC. With reference to the SA Health Care Act 2008—Section 93—Confidentiality and Disclosure of Information, Section 3 subsection 2—the act does not prevent a person from disclosing information for medical or social research purposes if the research methodology had been approved by an ethics committee and there is no reason to believe that the disclosure would be contrary to the person’s best interest.
: Not applicable.
: The authors declare that they have no competing interests.