Funding for this research was provided by:
Foundation for the National Institutes of Health (R01NR010548)
Received: 2 September 2017
Accepted: 31 August 2018
First Online: 12 September 2018
Ethics approval and consent to participate
: This study was approved by the Institutional Review Board for Human Subjects Research of Duke University School of Nursing (Pro00002345). Informed consent was obtained from all parents and HCPs who participated in the study. Privacy precautions were in place to protect the identities of parents, patients, HCPs, and individuals or institutions referenced in interview transcripts.
: This manuscript does not contain any protected health information or data that could be directly or indirectly linked to any individual person.
: The authors declare that they have no competing interests.
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