Funding for this research was provided by:
Marie Curie (MCCC-FPR-11-U)
Alzheimer's Society (399 AS-JF-17b-016, 325 AS-SF-16-004)
Received: 2 May 2019
Accepted: 20 September 2019
First Online: 24 October 2019
Ethics approval and consent to participate
: All participation was voluntary with full written, and verbal, informed consent. Ethical approval was granted by the London – Bentham Research Ethics Committee (Reference: 12/LO/0346).
: NK and BC are associate editors for BMC Palliative Care but they had no involvement in the editorial handling of this paper. KM, LJ, ES, BC, SD, MK, GL and IN declare to have no competing interest.