Funding for this research was provided by:
Marcia Mackie Scholarship, School of Nursing and Midwifery, Queen's University Belfast (2014)
All Ireland Institute of Hospice and Palliative Care, Ireland and Health and Social Care, Research and Development, Public Health Agency, Belfast Northern Ireland (EAT/4694/2012)
Received: 9 December 2019
Accepted: 22 July 2020
First Online: 30 July 2020
Ethics approval and consent to participate
: Ethics approval for the study was secured from The Hospital for Sick Children Research Ethics Board (#1000049327) and Holland Bloorview Research Ethics Board (#15–600) prior to proceeding with the study. Administrative approvals were also provided by Emily’s House Children’s Hospice and the University of Toronto. Participants were provided with the consent form and signified consent by submission of the survey.
: Not applicable.
: The authors declare that they have no competing interests.