Funding for this research was provided by:
Patient-Centered Outcomes Research Institute (ME-1503-28785)
Received: 11 December 2019
Accepted: 14 May 2020
First Online: 25 May 2020
Ethics approval and consent to participate
: This study was approved by the New England Institutional Review Board (IRB #: 120180043) and Health Insurance Portability and Accountability Act (HIPPA) waiver of authorization was obtained for the outreach activity. Enrollment into respective PPRNs was governed by relevant IRBs associated with the respective PPRNs (the ABOUT network, the University of South Florida IRB; the ArthritisPower PPRN, Advarra IRB; the iConquerMS PPRN, Copernicus Group IRB; the VPPRN, the University of South Florida IRB) and patient written consent was obtained accordingly. Researchers only accessed patient data that were relevant for this study, and in strict compliance with all applicable privacy policies specified in the HIPAA.
: Not applicable.
: RS received payment for serving as Chief Medical Officer of InformedDNA, which provides a network of genetics specialists and genetics benefit management services in partnership with health plans, including Anthem, Inc. KH, AA, XC, WBN, SL, RM, KY, BCE, CB, AS, PAM, and JC report no conflict of interest.