Keefe, Janice M. http://orcid.org/0000-0003-3073-8535
Funk, Laura
Knight, Lucy
Lobchuk, Michelle
Macdonald, Marilyn
Mitchell, Lori
Rempel, Julie
Warner, Grace
Stevens, Susan
Funding for this research was provided by:
Canadian Institutes of Health Research (FRN 155950)
Article History
Received: 1 May 2020
Accepted: 25 May 2020
First Online: 12 June 2020
Ethics approval and consent to participate
: Ethics approval was obtained using a two-site model, with site-specific clearances received for the Client/Service Data Stream and the Constellation Data Stream, and secondary clearances received from the study lead’s institutional research ethics board at Mount Saint Vincent University. Client/Service Data Stream: Primary ethics approval for the WRHA (Manitoba) study site was obtained from the University of Manitoba Health Research Ethics Board (Ethics # HS22118[H2018:349]). Primary ethics approval for the NSHA (Nova Scotia) study site was obtained from the Nova Scotia Health Authority Research Ethics Board (File # 1024323). Secondary approvals for each study site were obtained from Mount Saint Vincent University Research Ethics Board (File # 2018–087[Manitoba]; File # 2018–202[Nova Scotia]). Constellation Data Stream: Primary ethics approval for the WRHA (Manitoba) study site was obtained from the University of Manitoba Psychology/Sociology Research Ethics Board (Protocol # P2018:146 [HS22462]) and by the WRHA Research Access and Approval Committee (Reference no. RAAC 2019–003). Primary ethics approval for the NSHA (Nova Scotia) study site was obtained from the Nova Scotia Health Authority Research Ethics Board (File # 1024409). Secondary approvals for each study site were obtained from Mount Saint Vincent University Research Ethics Board (File # 2018–117[Manitoba]; File # 2018–209[Nova Scotia]). Policy Stream: Ethics approval for the study lead to conduct key informant interviews was approved by the Mount Saint Vincent University Research Ethics Board (File # 2019–187).Processes to obtain informed consent have been approved, where required, by respective research boards. Constellation Data Stream: An informed consent form will be mailed or emailed to each participant approximately one week in advance of their interview, to allow the participant an opportunity to review the form and raise any questions. Written informed consent will then be obtained by the person conducting the interview, during an informed consent discussion prior to the interview commencing. Policy Stream: An informed consent form will be emailed to each participant in advance of their interview. Participants will be asked to sign and return the consent form prior to the interview. However, past experience interviewing key informants over the phone in their professional capacities suggests that signed consent forms may not always be returned by the time of the interview. If the form has not been returned prior to the interview, ethics approval is obtained to allow verbal consent to be given, and for the signed form to be emailed to research staff afterwards. Client/Service Data Stream: This stream uses data that is not personally identifiable. Approval to waive informed consent was obtained by the respective ethics boards.
: Not applicable.
: SS is the Senior Director of Continuing Care with the Nova Scotia Health Authority, one of the partners of this research and a study site. LM is employed as a researcher on home care with the Winnipeg Regional Health Authority, the other study site.