Funding for this research was provided by:
Forskningsrådet om Hälsa, Arbetsliv och Välfärd (2014-4753)
Received: 21 April 2020
Accepted: 5 October 2020
First Online: 15 October 2020
Ethics approval and consent to participate
: Approval was obtained from the Regional Ethical Review Board in Lund (Swedish government agency) (Ref. No. 2013/15). The government authorities responsible for the national registers used in this study do not provide personal identification numbers to researchers for research studies. This meant that it was no possible to obtain informed written consent from the participants in this study. Instead, the Ethical Review Board took its decision based on an active refusal from the participants described as follows. According to the demands from the Ethical Review Board, the information about the planned study and how to withdraw from the study was advertised in two major newspapers in Sweden. One of these was a widespread national public newspaper and the other a national newspaper “Unik” distributed by the Swedish National Association for Persons with Intellectual Disability (FUB) and supporting members.In the next step, permission was needed to access the data from the two register holders. The National Board of Health and Welfare, and Statistics Sweden each performed separate secrecy reviews in 2014 before providing access to the data. All analyses were performed using anonymised datasets.The authors assert that all procedures contributing to this work complied with the ethical standards of the relevant national and institutional committees on human experimentation and with the revised version of the Helsinki Declaration from 2008.
: Not applicable.
: The authors declare that they have no competing interests.