Clarke, Harrison http://orcid.org/0000-0001-7341-4018
Morris, Walter http://orcid.org/0000-0001-6965-3518
Catanzano, Matteo http://orcid.org/0000-0002-7876-4348
Bennett, Sophie http://orcid.org/0000-0002-1076-7112
Coughtrey, Anna E.
Heyman, Isobel http://orcid.org/0000-0001-7358-9766
Liang, Holan
Shafran, Roz http://orcid.org/0000-0003-2729-4961
Batura, Neha http://orcid.org/0000-0002-8175-8125
Funding for this research was provided by:
Beryl Alexander Charity and the Great Ormond Street Hospital Children’s Charity (W1132, W1132, W1132, W1132, W1132, W1132, W1132, W1132, W1132)
Article History
Received: 21 August 2021
Accepted: 29 March 2022
First Online: 19 April 2022
Declarations
:
: Ethics approval was granted by the London Riverside Research Ethics Committee (REC reference number: 16/LO/1915). An informed consent was taken in writing from all participants (parents, siblings and index children aged 16 and above who had capacity to consent) included in the study by research assistants. In some instances, participants verbally consented over the phone, which was recorded and the responses were written up by the research assistants. In the case of children under the age of 16 years, assent was obtained from the relevant child (ie, sibling, index child or both) alongside parental consent.
: Not applicable.
: No conflict of interest to declare.