Olesen, Lene Klem http://orcid.org/0000-0003-0225-6045
la Cour, Karen http://orcid.org/0000-0001-7126-0318
With, Heidi http://orcid.org/0000-0001-7790-9026
Mahoney, Annette Faber http://orcid.org/0000-0002-8567-9686
Handberg, Charlotte http://orcid.org/0000-0002-1378-2449
Article History
Received: 13 December 2021
Accepted: 25 April 2022
First Online: 24 May 2022
Declarations
:
: On 20/11/2020 the study was retrospectively registered on ExternalRef removed [ID no. NCT04638608] and follows the COREQ checklist [CitationRef removed] and the Declaration of Helsinki [CitationRef removed]. Ethical approval for this study was deemed unnecessary according to national regulations by the Danish Data Protection Agency [File no. 2019-521-0144] and the Central Denmark Region Committees on Health Research Ethics [File no. 1-10-72-1-19]. Participants were informed orally and in writing about the project and the aim of the study. Oral and written informed consent were obtained from all participants and data were anonymized and participants referred to by identifying initials. No relationship between the participants and authors 1, 2, 4, and 5 was established prior to study commencement. Author 3 knew two of the participants from her work as an ALS counsellor.
: Not applicable.
: The authors declare that they have no competing interests.