Funding for this research was provided by:
UK Skeletal Dysplasia Group (2013)
Received: 2 December 2020
Accepted: 28 May 2021
First Online: 6 June 2021
: Ethics committee review for our cohort was obtained. Approval number 08/H0810/14—National Bromley Research Ethics Committee at Guy’s and St. Thomas’s Hospitals NHS Foundation Trust. Clinical/personal patient data was obtained as part of clinical care. Informed consent (written) to participate was obtained from the parents/legal guardians of all participants in the study. [This is a clinical paper not a research study hence an IRB was not involved].
: Patient privacy and confidentiality have been protected. All patients were study participants at the Guy’s and St Thomas’ Hospital clinical site. Authors have full written consent to publish the information from the patient(s) or their parent(s)/legal guardian(s) prior to submission.