Todd, Jamie L. http://orcid.org/0000-0003-4247-3693
,
Neely, Megan L.
Overton, Robert
Durham, Katey
Gulati, Mridu
Huang, Howard
Roman, Jesse
Newby, L. Kristin
Flaherty, Kevin R.
Vinisko, Richard
Liu, Yi
Roy, Janine
Schmid, Ramona
Strobel, Benjamin
Hesslinger, Christian
Leonard, Thomas B.
Noth, Imre
Belperio, John A.
Palmer, Scott M.
Article History
Received: 19 July 2019
Accepted: 20 September 2019
First Online: 22 October 2019
Ethics approval and consent to participate
: The IPF-PRO Registry was approved by the Duke University Institutional Review Board (Pro00046131). The IPF-PRO Registry protocol was also approved by the relevant Institutional Review Boards and/or local Independent Ethics Committees prior to patient enrolment at each site listed in the Acknowledgments and all patients provided informed consent. The MURDOCK Study Community Registry and Biorepository was approved by the Duke University Institutional Review Board, and all participants provided written informed consent.
: Not applicable.
: JLT, MLN, RO, LKN and SMP are employees of the Duke Clinical Research Institute, which receives funding support from Boehringer Ingelheim Pharmaceuticals, Inc. to coordinate the IPF-PRO Registry. MG reports personal fees, non-financial support, and other support from the France Foundation; grants, non-financial support and other support from Boehringer Ingelheim and the Pulmonary Fibrosis Foundation; and personal fees from Genentech. HH is on a speaker panel for Boehringer Ingelheim. JRoman reports grants and personal fees from Boehringer Ingelheim; and grants from Genentech, the Department of Veterans Affairs, and the National Institutes of Health. Until the end of 2017, JRoman served on the board of the American Lung Association - Midland States, and chaired the American Thoracic Society Committee on Health Equality and Inclusion. KRF reports grants and personal fees from Boehringer Ingelheim and Roche/Genentech; and personal fees from FibroGen, Sanofi Genzyme, and Veracyte. JRoy is an employee of Staburo GmbH, which was contracted by Boehringer Ingelheim for this work. IN reports personal fees from Boehringer Ingelheim, Genentech and ImmuneWorks. JAB has no disclosures. KD, RV, YL, RS, BS, CH and TBL are employees of Boehringer Ingelheim.