Funding for this research was provided by:
National Institute for Health Research (SRF-2013-06-013)
Text and Data Mining valid from 2018-10-19
Received: 20 March 2018
Accepted: 26 September 2018
First Online: 19 October 2018
Ethics approval and consent to participate
: Qualitative data: Full ethical approval was obtained from the NRES Committee North West (08/04/2014, ref 14/NW/0170). An amendment to use one-to-one interviews with children, parents and clinicians who are unable to attend focus groups and to include exploration of important outcomes was approved (21/10/2014, ref 14/NW/0770). Relevant R&D approval was obtained from the RNHRD (20/06/2014, ref-RBB 427).Quantitative data: The quantitative data was collected routinely as part of service evaluation. The North Somerset & South Bristol Research Ethics Committee determined that collection and analysis of these CFS/ME patient data did not require ethical review by an NHS Research Ethics Committee or approval by NHS Research and Development offices (REC ref. 07/Q2006/48).
: Not applicable.
: EC is an unpaid medical advisor for the Sussex & Kent ME/CFS Society.
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