Funding for this research was provided by:
NIHR Policy Research Programme—Using Patient Reported Outcome Measures to Assess Quality of Life in Dementia (070/0071)
Received: 1 April 2019
Accepted: 20 August 2019
First Online: 26 October 2019
Ethics approval and consent to participate
: Patients and carers provided written consent to take part. The study protocol was approved by the National Research Ethics Service Committee London (reference: CitationRef removed/LO/1146) and the London School of Hygiene and Tropical Medicine (reference: 8418).
: Not applicable.
: Dr. Sarah Smith is the first author of the original development of DEMQOL and DEMQOL-Proxy (Smith et al. Development of a new measure of health-related quality of life for people with dementia: DEMQOL. Psychol Med. 2007;37:737–46). The instrument is publically available with no charge. All other authors declared no competing interests.