Funding for this research was provided by:
EuroQol Research Foundation (Project 20170540.)
Received: 9 January 2020
Accepted: 19 May 2020
First Online: 24 May 2020
Ethics approval and consent to participate
: Ethical approval was granted from the University of Cape Town Human Research Ethics Committee (HREC/REF: 825/2017). All caregivers signed consent to participate in the study.
: All caregivers signed consent to participate in the research study and have any results published.
: All the authors are members of the EuroQoL Research Group. The main outcome measure, the EQ-5D-Y Proxy was developed by the EuroQoL Group.