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Article History

Received: 18 February 2021

Accepted: 14 September 2021

First Online: 28 September 2021

Declarations

:

: The study was approved by the South West – Central Bristol Research Ethics Committee (IRAS 288729 Bristol SW REC).

: All study participants provided written consent to participate in the study.

: Not Applicable.

: Medialis continues to run the PAC-19QoLReg patient registry in association with the Centre for Pharmaceutical Medicine Research, Institute of Pharmaceutical Science, Faculty of Life Science & Medicine, King's College London, as part of its Corporate Social Responsibility Project.

: The author is a visiting senior lecturer at the Centre for Pharmaceutical Medicine Research at King’s College London responsible for research into real-world evidence approaches. The author is also the Founder and CEO of Medialis Ltd, a medical affairs consultancy and contract research organisation involved in the design and delivery of real-world evidence including the patient reported outcomes and patient registries.