Schubbe, Danielle
Yen, Renata W.
Saunders, Catherine H.
Elwyn, Glyn
Forcino, Rachel C.
O’Malley, A. James
Politi, Mary C.
Margenthaler, Julie
Volk, Robert J.
Sepucha, Karen
Ozanne, Elissa
Percac-Lima, Sanja
Bradley, Ann
Goodwin, Courtney
van den Muijsenbergh, Maria
Aarts, Johanna W. M.
Scalia, Peter
Durand, Marie-Anne https://orcid.org/0000-0002-8173-1993
Funding for this research was provided by:
Patient-Centered Outcomes Research Institute (CDR-1511-32975)
Article History
Received: 20 November 2020
Accepted: 7 April 2021
First Online: 10 May 2021
Declarations
:
: Ethics approval for this study was provided by the Dartmouth Committee for the Protection of Human Subjects on June 8, 2017. Montefiore Medical Center provided an authorization agreement to rely on Dartmouth’s approval on September 8, 2017. Ethics approval was provided by Washington University in St. Louis Institutional Review Board on May 9, 2017. New York University School of Medicine provided ethics approval on August 29, 2017.
: Not applicable
: ● Glyn Elwyn has edited and published books that provide royalties on sales by the publishers: the books include <i>Shared Decision Making</i> (Oxford University Press) and <i>Groups</i> (Radcliffe Press). Glyn Elwyn’s academic interests are focused on shared decision-making and coproduction. He owns copyright in measures of shared decision-making and care integration, namely <b>collabo</b>RATE, <b>integ</b>RATE (measure of care integration), <b>conside</b>RATE (patient experience of care in serious illness), <b>coope</b>RATE (measure of goal setting), <b>tole</b>RATE (clinician attitude to shared decision-making), Observer OPTION-5, and Observer OPTION-12 (observer measures of shared decision-making). He has in the past provided consultancy for organizations, including (1) Emmi Solutions, LLC who developed patient decision support tools; (2) National Quality Forum on the certification of decision support tools; (3) Washington State Health Department on the certification of decision support tools; (4) SciMentum LLC, Amsterdam (workshops for shared decision-making). He is the Founder and Director of &think LLC, which owns the registered trademark for Option GridsTM patient decision aids; Founder and Director of <b>SHARP</b>NETWORK LLC, a provider of training for shared decision-making. He provides advice in the domain of shared decision-making and patient decision aids to (1) Access Community Health Network, Chicago (Adviser to Federally Qualified Medical Centers); (2) EBSCO Health for Option GridsTM patient decision aids (consultant); (3) Bind on Demand Health Insurance (consultant); (4) PatientWisdom Inc (adviser); (5) abridge AI Inc (Chief Clinical Research Scientist).● Glyn Elwyn and Marie-Anne Durand have developed the Option Grid conversation aids, which are licensed to EBSCO Health. They receive consulting income from EBSCO Health and may receive royalties in the future. Marie-Anne Durand was a consultant for ACCESS Community Health Network until 2019.● From 2014-2018, Dr. Karen Sepucha received salary support as a member of the scientific advisory board for Healthwise, a not-for-profit foundation that develops and distributes patient education and decision support materials.● Catherine Hylas Saunders holds copyright in the consideRATE suite of tools.No other competing interests declared.