Guien, Céline
Blandin, Gaëlle
Lahaut, Pauline
Sanson, Benoît
Nehal, Katia
Rabarimeriarijaona, Sitraka
Bernard, Rafaëlle
Lévy, Nicolas
Sacconi, Sabrina
Béroud, Christophe http://orcid.org/0000-0003-2986-8738
Funding for this research was provided by:
AFM-Téléthon (#DMFSH802)
Article History
Received: 25 July 2018
Accepted: 22 November 2018
First Online: 4 December 2018
Ethics approval and consent to participate
: The legal approval for the French FSHD registry has been obtained from the CNIL (French National Committee for Informatics and Liberty) under authorization No. 912291 on June 25th, 2012. The CCTIRS (French advisory committee on information treatment for research in health) also gave a favorable opinion No. 12.004bis.
: Consents have been obtained from all patients to use and store their data in the French FSHD registry in agreement with the CNIL authorization.
: The authors declare that they have no competing interests.
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