Gonano, Cynthia
Pasquier, Jérôme
Daccord, Cécile
Johnson, Simon R.
Harari, Sergio
Leclerc, Violette
Falconer, Lucy
Miano, Eleonora
Cordier, Jean-François
Cottin, Vincent http://orcid.org/0000-0002-5591-0955
Lazor, Romain http://orcid.org/0000-0002-2933-0754
Article History
Received: 1 October 2018
Accepted: 26 November 2018
First Online: 13 December 2018
Ethical approval and consents to participate
: All patients provided written informed consent. As the data collection was initiated by patient associations themselves and took place in several European countries, ethical approval was waived.
: Not applicable.
: CG has nothing to disclose. JP has nothing to disclose. CD has nothing to disclose. SJ reports personal fees from Novartis, outside the submitted work. SH reports personal fees from Roche, grants and personal fees from Actelion and Boehringer-Ingelheim, outside the submitted work. VL has nothing to disclose. LF has nothing to disclose. EM has nothing to disclose. JFC has nothing to disclose. VC reports personal fees from Novartis, outside the submitted work. RL reports personal fees from Boehringer-Ingelheim, grants and personal fees from Roche, personal fees from Vifor, outside the submitted work.
: Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.