Funding for this research was provided by:
Nederlandse Organisatie voor Wetenschappelijk Onderzoek (-)
Health Research Board (-)
Dutch Galactosemia Research foundation (-)
European Galactosemia Society (-)
British inherited Metabolic Disease Group (-)
Batzebar foundation (-)
Galaktosamie Schweiz patient organization (-)
Spanish Galactosemia foundation (-)
Text and Data Mining valid from 2019-04-27
Received: 15 January 2019
Accepted: 12 March 2019
First Online: 27 April 2019
Ethics approval and consent to participate
: All procedures followed were in accordance with the ethical standards of the responsible committee on human experimentation (institutional and national) and with Principles of the Declaration of Helsinki. The study was approved by the local ethics committee of the coordinating center, the Medical Ethical Committee (Medisch Ethische Toetsingscommissie, METC) of the Maastricht University Medical Center +, and subsequently approved for all participating partners. Informed consent was obtained from all patients, or their parents/guardians, prior to inclusion, data collections and entry.
: Consent was obtained from all patients for publication.
: M.E.R-G., M.H., B.B., A.I.C., D.C, M.L.C., C.D., D.D., T.D., F.E., M.T.F., S.G., J.H., M.H., A.H., H.H.H., P.J., J.K., I.K., P.L., Y.E.L., J.G.L., D.M., D.M-W., K.Õ., D.R., I.A.R., S.S-B., K.M.S., A.T., C.T., R.Va., G.V., R.Vo., M.V., S.E.W., M.W-K., S.B.W., M.G., E.P.T., G.T.B. declare that they have no competing interests. A.M.B. has received a speakers fee and has been a member of advisory boards for Nutricia and Biomarin. E.M. has received travel funding, research grants and support from Nutricia UK.
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