Funding for this research was provided by:
Stichting kinderen en kansen (not applicable)
Stichting Zabawas (-)
Zeldzame Ziekten Fonds (-)
Received: 17 May 2019
Accepted: 22 October 2019
First Online: 12 November 2019
Ethics approval and consent to participate
: All procedures were in accordance with the Principles of the Declaration of Helsinki. The study was approved by the local ethics committee of the coordinating center, the Medical Ethical Committee of the Amsterdam University Medical Centers, location AMC. Written informed consent was obtained from patients for the publication of photographs in this article.
: Consent was obtained from all patients for publication.
: The authors declare that they have no competing interests.