Funding for this research was provided by:
radiz Clinical Research Priority Program for Rare Diseases
Text and Data Mining valid from 2019-11-08
Received: 17 July 2019
Accepted: 22 October 2019
First Online: 8 November 2019
Ethics approval and consent to participate
: All procedures were conducted in accordance with the Helsinki Declaration of 1975, as revised in 2000 and approved by the ethical committee (Kantonale Ethikkommission) Zürich (BASEC-Nr. Req.2016–00312). Informed consent was obtained from all participants / their legal representatives to be included in the study.
: Not applicable.
: Nina A. Zeltner and Martina Huemer have received research grants from Nutricia – Advanced Medical Nutrition. Annet M. Bosch has received speakers’ fee from Nutricia and has been a member of advisory boards for Biomarin.Mendy M. Welsink-Karssies, Dominique Bosshard-Bullinger, Fabia Keller, Marike Groenendijk, Sarah C. Grünert, Daniela Karall, Beatrix Rettenbacher, Sabine Scholl-Bürgi, Matthias R. Baumgartner and Markus A. Landolt declare no conflict of interest.