Patterson, Marc C.
Mengel, Eugen
Vanier, Marie T.
Moneuse, Patrick
Rosenberg, Daniel
Pineda, Mercedes
Funding for this research was provided by:
Actelion Pharmaceuticals
Article History
Received: 29 October 2019
Accepted: 18 March 2020
First Online: 25 April 2020
Ethics approval and consent to participate
: Before enrollment into the Registry, the patient and/or legal guardian must have signed a Patient Informed Consent Form, which authorized data collection.
: Not applicable.
: MCP has been a member of Actelion Pharmaceuticals Ltd. Advisory Board, and has received honoraria for talks from Actelion Pharmaceuticals Ltd.EM has been a member of Actelion Pharmaceuticals Ltd. Advisory Board, and has received honoraria for talks and/or research grants from Actelion Pharmaceuticals Ltd.MTV has been a member of Actelion Pharmaceuticals Ltd. Advisory Board, and has received travel reimbursement and honoraria for talks from Actelion Pharmaceuticals Ltd.PM and DR are employees of Actelion Pharmaceuticals Ltd.MP has received honoraria for talks and travel reimbursement from Actelion Pharmaceuticals Ltd.