Received: 27 February 2020
Accepted: 18 May 2020
First Online: 12 June 2020
Ethics approval and consent to participate
: Ethical approval for this study was obtained from the institutional ethics board of MHH (no. 7922_BO_K_2018). All study participants gave their written consent to participate in this study.
: All study participants gave their written consent to the publication of anonymous (cohort) data.
: The authors declared the following potential conflicts of interest with respect to the research, authorship, and/or publication of this article:ES reports no conflicts of interest.AO has received honoraria as a speaker/consultant from the German Neuromuscular Society “Deutsche Gesellschaft fuer Muskelkranke (DGM e.V.)” and Biogen GmbH. She has received academic research support by PRACTIS – Clinician Scientist Program of Hannover Medical School, funded by the German Research Foundation (DFG, ME 3696/3–1).LHM reports no conflicts of interest.SP has received grants by the German Neuromuscular Society (Deutsche Gesellschaft fuer Muskelkranke (DGM e.V.)), the Federal Ministry of Education and Research (BMBF), the German Israeli Foundation (GIF) for Scientific Research and Development and the EU Joint Programme for Neurodegenerative Disease Research (JPND). She has received speaking honoraria from Desitin Pharma, Biogen GmbH, Novartis and TEVA as well as fees for consulting from Biogen GmbH, Roche Pharma, Cytokinetics Inc.OSK has received honoraria as a speaker/consultant and/or funding for travel expenses from the German Neuromuscular Society (Deutsche Gesellschaft fuer Muskelkranke (DGM e.V.)), Novartis, Biogen GmbH and the Jain Foundation. She has received academic research support by the Ludwig-Maximilians-University of Munich, FoeFoLe program, Reg.-No. 747, 11/11–05/13, and the Hannover Medical School Young Faculty Program, 2018–2020. She has received research support from the Friedrich-Baur-GmbH, Burgkunstadt 12/13–12/15 and the German Neuromuscular Society "Deutsche Gesellschaft fuer Muskelkranke (DGM e.V.), 2019–2020.