Received: 4 October 2019
Accepted: 18 May 2020
First Online: 12 June 2020
Ethics approval and consent to participate
: No nominative, sensitive or personal data on patients were collected. This study was not a clinical trial and falls within the scope of the MR-004 Reference Methodology of the French National Commission for Data Protection and Liberties (CNIL, <i>Commission Nationale Informatique et Libertés</i>).The study was approved by the ethics committee of the French Society for Pediatrics (<i>Société Française de Pédiatrie</i>) under number CER_SFP 2018_095, and registered by the institutional review board under n° 2018_2.
: Not applicable.
: The authors declare that they have no competing interests.This study was supported by the French network of neuromuscular disorders (FILNEMUS).