Funding for this research was provided by:
Shire Deutschland GmbH
Received: 25 March 2020
Accepted: 9 August 2020
First Online: 26 August 2020
Change Date: 23 February 2021
Change Type: Correction
Change Details: A Correction to this paper has been published:
Change Details: https://doi.org/10.1186/s13023-021-01714-7
Ethics approval and consent to participate
: The ethics committee of the Rhineland-Palatinate Chamber of Physicians approved study conduct (reference number 837.504.16 (10822)).
: Consent to participate in the study was obtained from all participating patients. This included consent to the publication of results at an aggregated level.
: HG is employed by IGES Institut GmbH. CO and SK were employed by IGES Institut GmbH at the time the study was prepared. IGES Institut GmbH received funding from Shire Deutschland GmbH for the execution of the study and manuscript preparation