Funding for this research was provided by:
Ministero dell’Istruzione, dell’Università e della Ricerca (Ricerca Corrente 2019 and 2020)
European Joint Program on Rare Diseases (NSEuroNet)
Received: 25 June 2020
Accepted: 5 January 2021
First Online: 22 January 2021
Ethical approval and consent to participate
: The study was approved by our Institutional Ethic Committee. Parents’ patients signed a written informed consent.
: Not applicable.
: The authors declare that they have no competing interests.