Received: 2 July 2021
Accepted: 12 August 2021
First Online: 19 August 2021
: This study used retrospective anonymised data only. Ethics approval and consent to participate were not necessary to be obtained.
: Not applicable.
: The authors of this manuscript declare no competing interests but disclose the following: MHu has received research grants from Nutricia Metabolics and consultancy honoraria from SOBI, Aeglea, Shire, Sanofi, and Orphan Europe. SSB has received research grants from Nutricia Metabolics and consultancy honoraria from Nutricia Metabolics and Dr. Schär. MHe, MBK, DK, BG, DM, BP, JS, JZ and SBW have nothing to disclose related to the contents of this study.