Leiro, Beth http://orcid.org/0000-0003-0561-5955
Phillips, Dawn
Duiker, Melanie
Harmatz, Paul
Charles, Sharon
Funding for this research was provided by:
paradigm biopharmaceuticals
Article History
Received: 27 July 2021
Accepted: 6 November 2021
First Online: 2 December 2021
Declarations
:
: Ethics approval was not required for this project as per Part 46.104, Protection of Human Subjects of the Electronic Code of Federal Regulations. Participants with mucopolysaccharidosis VI provided consent/assent to participate in the focus group.
: Written informed consent for publication of participant quotes was obtained from the patients and/or caregivers. Sex-specific pronouns in participant quotes have been replaced with sex-neutral pronouns, where applicable.
: The authors declare that they have no competing interests.