Funding for this research was provided by:
Received: 16 April 2021
Accepted: 19 December 2021
First Online: 14 January 2022
: All participants (patients and HCPs) received verbal and written information about the procedures and objectives of the study, and they signed an informed consent before their inclusion. The patients under the age of 18 assent to participate, but the informed consent was signed by their parents. The confidentiality was anytime guarantee according to the current European General Data Protection Regulation (GDPR, 2016/679) and the related Spanish Law 3/2018. The study was developed under the ethical principles of the Declaration of Helsinki and its amends.
: Not applicable.
: Juan de Dios García-Díaz, Mónica López-Rodríguez, Montserrat Morales-Conejo, Antoni Riera-Mestre have received funding for medical projects and as advisors from industries with specific therapies in LSDs.