Cunningham, Amy http://orcid.org/0009-0009-5304-0931
Rohr, Fran
Splett, Patricia
Mofidi, Shideh
Bausell, Heather
Stembridge, Adrya
Kenneson, Aileen
Singh, Rani H.
Funding for this research was provided by:
Health Resources and Services Administration (5UH7MC30772-06-00)
Article History
Received: 6 March 2023
Accepted: 18 May 2023
First Online: 22 June 2023
Declarations
:
: HB, RHS, FR, and AC have received honoraria from BioMarin for participation in professional advisory groups. The authors declare no other conflicts of interest. Full disclosure of any sponsorship or competing interests by authors of publications cited, especially when referring to BioMarin, may be found in those papers.
: Not applicable.
: The Dephi surveys were conducted according to the guidelines of the Declaration of Helsinki, and approved by the Institutional Review Board of Emory University (FWA#00005792, Study #00051630). Informed consent was obtained from all subjects involved in the Delphi surveys.