Cockerell, Ine http://orcid.org/0000-0002-6810-3941
Christensen, Jakob
Hoei-Hansen, Christina E.
Holst, Lotte
Grenaa Frederiksen, Mikkel
Issa-Epe, Aart Imran
Nedregaard, Bård
Solhoff, Ragnar
Heimdal, Ketil
Johannessen Landmark, Cecilie
Lund, Caroline
Nærland, Terje
Funding for this research was provided by:
Norwegian National Advisory Unit on Rare Disorders
Stiftelsen Kristian Gerhard Jebsen (SKGJ-MED-021)
University of Oslo
Article History
Received: 4 May 2023
Accepted: 18 November 2023
First Online: 2 December 2023
Declarations
:
: The Norwegian Medical Ethics Committee reviewed and approved the study (ethic committee number 2013/176-36). The Central Denmark Region Committees on Health Research Ethics declared the study exempted from notification, as a data processing contract was completed.
: Written informed consent was received from patients ≥ 16 years and from parents/guardians of patients < 16 years and of patients without competence to consent.
: Ine Cockerell gave an unpaid lecture to UCB Nordic. Jakob Christensen has received honoraria from serving on the scientific advisory board of UCB Nordic and Eisai AB, received honoraria for giving lectures from UCB Nordic and Eisai AB, and received funding for a trip from UCB Nordic. Cecilie Johannessen Landmark has received advisory board/speaker’s honoraria from Angelini, Eisai, Jazz, and UCB Pharma. Christina E. Høi-Hansen received speaker’s honoraria from Eisai. Caroline Lund received speaker’s honoraria from Eisai, UCB, and Jazz.