Funding for this research was provided by:
French Ministry of Health (PHRC-N 2015 – AOM 15014)
Received: 7 August 2018
Accepted: 27 November 2018
First Online: 22 December 2018
Ethics approval and consent to participate
: The study was approved by our local institutional review board (Comité de protection des personnes, Ile de France IV, Saint Louis; number 2016/13), Commission Nationale de l’Informatique et des Libertés (which is responsible for ensuring that data privacy law is applied to the collection, storage, and use of personal data; number MMS/ABD/AR1611499), and Comité Consultatif sur les Traitements de l’Information en matière de Recherche dans le domaine de la Santé (number 16–315). All participating relatives signed an informed consent form.
: Not applicable.
: The authors declare that they have no competing interests.
: Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.